trigeminal neuralgia and prednisonePosted 29 November at I am 59 years old and I have had extreme jaw pain for the last trigeminal neuralgia treatment prednisone days. I went to the dentist last Tuesday and she could not identify tooth that was causing pain. She gave me a zpak and Tramadol to no avail. I trifeminal back to her today believing I had two abscessed teeth.
Diagnosed today with Trigeminal Neuralgia | Trigeminal Neuralgia | Patient
Posted 29 November at I am 59 years old and I have had extreme jaw pain for the last 10 days. I went to the dentist last Tuesday and she could not identify tooth that was causing pain.
She gave me a zpak and Tramadol to no avail. I went back to her today believing I had two abscessed teeth. She tested me and called my gp, who saw me and diagnosed me with TN.
He prescribed prenidsone and carbamazepine and tylenol. I live half-way between Houston and Austin. If it doesn't offer relief soon, I will go crazy! Any advice is welcome.
I was diagnosed with TN a year ago, and I took a similar route. I went to the dentist first who referred me to a neurologist. I don't know if other people have a similar experience with the drug. You are probably on the right drug to start with. If you do not have a neurologist now you should find one for ongoing care.
Because TN is rare your GP will not have as much knowledge as a neurologist. I hope you feel better soon. I am looking for a neurologist. There are many to choose from in Austin, so asking for references from friends. If carbamazepine does not quickly take away the pain then it may not be TN. That is one of the "tests" to confirm TN. My electric shock like pains went away within 2 hours of starting the carbamzepine Prednisone will keep you awake and feeling miserable. I am not sure why your doctor would give you tylenol.
You need to either go back to your family doctor or if you have quick access to a neurologist that would be great. And also based on my personal experience with TN Not a long term treatment, just an additional measure to get things under control.
I am now on carbamazepine, mg 3 times a day. The dosage can always be adjusted depending on your pain level and frequency. I see a neurologist who specializes in pain management.
It helps that she also has TN so she is very helpful and knowledgeable. She has been a great help. Best of luck to you. Thanks for positive support Hopefully my pity party will end soon, and I persue finding a good neurologist. It is probably the prednisone that is preventing you from sleeping. Usually, prednisone is just for short periods. So, you might not be on it forever. It didn't interfere with my sleep when I was on it and it made me nice and buzzy during the day and helped me get things done.
Everyone is different, so hang in there. Ask about the gamma knife treatment.. Friend had it,two weeks later dramatic difference in quality of life. They felt her tn was actually caused by dental work. She took meds for years but had to increase to max dose and besides the pain,felt very out of it from high doses of meds. I will keep this suggestion in mind, but not sure I am at the stage to persue this treatment yet. Welcome to our world.
Please don't go crazy. I totally understand what you are going through and that it is a mostly mysterious field and out of most doctors and neurologists scope. I'm from a small city where three neurologist misdiagnosed me and pummeled me with various medications and treatments that failed.
I felt warehoused in bed from narcotics from a pain clinic where I was offered methadone upon walking in without exam. I promptly denied and walked away.
They will see you. We drive two and a half hours to get there. Well worth the trip. They have extensive knowledge about trigeminal neuralgia and how to treat it properly with the right medications. I felt like the heavens had opened and cried with joy on my way back after my first visit. Those were very happy tears! I'm surprised to learn that you have not been to put on Tegretol or Trileptal. If you are a small framed person, I believe that you should start with Trileptal first. It won't give you the punch in the stomach.
Now mind you, you will be nauseous at the beginning but it will work for you if you are truly suffering from TN, it WILL work. Just hang in there. I use mine in conjunction with the Gabapentin. This combination has subsided episodes per day to about 6 or 7. I also take Xanax for the anxiety and the fearful anticipation that is consistent with this disorder. I wish you will keep us updated on your progress. Following this group has made me feel that I am not alone.
This disease will separate you from your former life as you knew it. It is very difficult to describe what you are going through to your loved ones and Friends. I highly recommend that you see a therapist either by Skyping or talking. Most of us don't like to get out very often, so this is understandable. Wear sunglasses in fluorescent lighting. They tend to over stimulate your brain.
I also about avoid large crowds at the mall as I am again "visually" over-stimulated. We pray for your speedy attention to your situation. Thanks for all your information! UTSA is about hours for me. I will gladly drive there. Should I ask to see anyone in particular?
I had a good day yesterday! Benedryl helped me sleep and it is much easier to face this disease when fatigue is not an issue.
Today was not so good. Lots of pain this morning and queasy all day, but I went from 1 Carbamazepin to 2 today A highly recommended neurologist in Austin received my info yesterday, so waiting to see if she accepts me as a patient. But will definitely look into UTSA. I am seeing Dr. Francisco Gonzales-Scarano, or Dr. They are timed precisely. This group is on a floor of its own 4th floor in the medical center. It is streamlined perfectly. The whole experience is less than one hour.
They really aren't interested in your past experiences with other doctors and tend to start fresh with each patient. You are seen for approximately 25 minutes then you are charted and then ready to go back home. If you need an MRI or lab work, it is done in the same building. It's all very quiet and peaceful and conducive to anyone with a neurological experience. There are other neurologist in this group.
They all confirm with each other about a plan of action. They are not surgery driven. The gamma knife procedure has been offered to me as a last result if the medications start to fail after a few years.